Albinism is a rare genetic condition that affects individuals worldwide, regardless of race or ethnicity. It is characterized by a reduction in the production of melanin, the pigment responsible for skin, hair, and eye color. Unfortunately, people with albinism often face social stigma and discrimination, particularly in developing countries, due to their unique appearance. However, one girl’s story is breaking barriers and raising awareness, proving that what sets us apart makes us stronger.
Born in China over 16 years ago, Xueli was abandoned by her biological parents due to her snow-white skin and appearance caused by albinism. Her parents’ inability to accept her led to an unfortunate start in life, with Xueli being left at an orphanage just days after birth. The staff at the orphanage, who affectionately named her Xueli (meaning “snow white and beautiful”), felt compassion for her, but they had no idea that her future would hold something extraordinary.
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Fortunately, Xueli was adopted by a loving family from the Netherlands, who provided her with a nurturing environment and a brighter future. However, the challenges she faced were far from over. Growing up with albinism, Xueli had to navigate the world with unique challenges, including the stigma associated with her condition.
At the age of 11, Xueli’s life took a dramatic turn when a famous photographer from Hong Kong discovered her. The photographer, who was known for a campaign highlighting people’s “perfect imperfections,” invited Xueli to join a fashion show in Hong Kong. This experience was a turning point for Xueli, who had never imagined her appearance would be considered anything but different. Yet, it was in this moment that she realized the power of her uniqueness.
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In an interview with BBC, Xueli said, “That was an amazing experience,” referring to her participation in the Hong Kong fashion show. Little did she know that her exposure on social media would propel her career forward. A photographer from London saw potential in Xueli’s distinct look and helped her land a cover shoot for Vogue Italia in June 2019.
For Xueli, the moment she appeared on the cover of one of the world’s most prestigious fashion magazines was surreal. “At the time, I didn’t know what an important magazine it was, and it took me a while to realize why people got so excited about it,” she recalled.
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While Xueli was beginning to make waves in the fashion industry, the road was still challenging. People with albinism in some parts of the world have been subjected to severe discrimination, even to the point of being harmed due to superstitions about their condition. In certain cultures, some believe that the bones of those with albinism possess magical properties, leading to horrific acts such as disfigurement and amputation of limbs. Xueli, however, was fortunate enough to escape such atrocities, and she views her journey as a blessing rather than a curse.
Now, as a rising star in the fashion world, Xueli is using her platform to raise awareness about albinism. She is committed to changing the narrative surrounding the condition and advocating for those who are still suffering due to ignorance and prejudice. “I want to use modeling to talk about albinism and say it’s a genetic disorder, it’s not a curse,” Xueli passionately stated.
Xueli believes that changing the way we speak about albinism is key to breaking down societal barriers. “The way to talk about it is to say ‘a person with albinism,’ because being ‘an albino’ sounds as if it defines who you are,” she explained. Her mission goes beyond just raising awareness — she aims to challenge the global narrative and fight against the harmful myths and stigma that people with albinism endure.
“I’m not going to accept that children are being murdered because of their albinism. I want to change the world,” Xueli added. Her determination to make a difference is a testament to her strength and resilience, as well as a reminder of the importance of embracing diversity in all forms.
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The fashion industry is gradually becoming more inclusive, and Xueli’s story is proof of the positive changes that are taking place. While there are still models who fit the traditional image of beauty — tall, thin, and able-bodied — Xueli’s success shows that diversity is being recognized and celebrated more than ever. “There are still models who are like eight foot two and skinny, but now people with disabilities or differences are featured more in the media and this is great — but it should be normal,” she said.
Ultimately, Xueli’s journey represents a much larger shift in societal perceptions. It’s a story that reminds us that beauty is not one-size-fits-all. In fact, it’s our differences that make the world a more colorful and beautiful place.
In conclusion, Xueli is not just a model — she is an advocate for change, a voice for those who are marginalized, and a powerful force in the fashion world. Through her work, she is challenging long-held misconceptions about albinism, and in doing so, she is paving the way for a future where people of all backgrounds and appearances are celebrated.
Xueli’s story is proof that beauty comes in all forms, and it’s our differences that should be embraced. Her determination and resilience continue to inspire people all over the world, proving that no matter what challenges we face, we can overcome them and create a better, more inclusive world for all.
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Feel free to share Xueli’s empowering journey with your friends and family to inspire others and help spread the message of acceptance and inclusion.
