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A Child’s Final Note: The Heartbreaking Loss and Search for Better Treatment

 

Stories about illness often remind us just how fragile life can be. In one deeply emotional case, a 6-year-old boy’s sudden illness has not only left a family in mourning, but also reminded the world of the importance of early treatment, medical awareness, and cherishing each moment.

Leland Shoemake, a bright and loving child from Williamson, Georgia, passed away after battling a rare brain infection. His unexpected death brought heartbreak to his family—but it also sparked awareness about an invisible danger and the critical need for research, prevention, and support for others.

Credit / GoFundMeCredit / GoFundMe


The Illness That Took Everything

In 2015, Leland suddenly became ill. What started as what doctors believed to be meningitis turned out to be a deadly brain infection caused by Balamuthia mandrillaris, a rare amoeba found in soil and water. It’s extremely rare—but when it strikes, early and aggressive treatment is the only hope.

His mother, Amber Shoemake, described his symptoms on their GoFundMe page: “He had bad headaches, fever, vomiting, dizziness, and eventually his eyes crossed. He couldn’t focus or see properly.” Despite immediate hospitalization, Leland’s condition rapidly worsened.

On September 25, 2015, Leland passed away—leaving behind not just memories, but a final, handwritten note that brought both peace and pain to his grieving parents.

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The Note That Broke and Healed Hearts

After returning from the hospital to prepare for their son’s funeral, Leland’s parents discovered a small note he had left on the table. It read:

“Still with you… Thank you mom and dad… Love.”
Inside a red heart, he had written the words “mom,” “dad,” and “love.”

His mother said, “We don’t know when he wrote it, but it was just like him. He was always leaving us notes and drawings. He was so special.”

The message, in a child’s handwriting, was a moment of deep clarity. It reminded them—and everyone who heard Leland’s story—of how love transcends even the deepest tragedies.


An Intelligent and Loving Soul

Leland wasn’t just any child. He had an early passion for learning, history, and science. By the age of one, he already knew his ABCs, colors, and more than 20 sight words. His favorite shows were documentaries, and he loved historical events like WWII and the Titanic.

He adored Steven Spielberg films and looked up to Adam Sandler. His charm lit up every room, and his kindness helped his family build strong bonds in their community.

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The Silent Danger in Everyday Play

What makes Leland’s story especially painful is that the infection likely came from something as innocent as playing in the dirt—his favorite activity. His mom wrote, “I tried to protect him, but I never imagined that the thing he loved most would be what took him from me.”

Experts believe Balamuthia mandrillaris infections may come from soil contact, but much about the amoeba remains unknown. Unlike many diseases that can be prevented or treated quickly, infections like Leland’s progress fast and offer little time for response.

This tragedy highlights a need for better research funding, rapid diagnostics, and awareness campaigns. With better understanding and access to advanced treatment, future lives could be saved.


Hope in Heartbreak: The Leland Shoemake Foundation

To honor Leland’s life, his family created The Leland Shoemake Foundation—a charitable initiative that aims to raise awareness about rare infections and support families facing similar loss. This initiative has helped others find information, emotional support, and even financial help.

Through this foundation, people have also been encouraged to donate toward medical research and pediatric care initiatives. In a world where many families can’t afford rare disease treatment, community support can save lives.

Amber and her husband have also spoken about the high costs related to hospitalization, tests, and medical transport. This has sparked conversations about the importance of having adequate insurance—especially when it comes to covering rare but catastrophic health conditions.


Lessons That Go Beyond the Illness

Leland’s story teaches us more than just medical facts. It tells us to hold our children tighter, to be present, and to never take a day for granted. It reminds us that children, even at a young age, can carry extraordinary wisdom and emotional intelligence.

It also shows the importance of education and public health communication. As parents, educators, or those studying for a degree in healthcare or pediatric care, understanding these silent threats becomes a responsibility—not just a career path.

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Conclusion: A Legacy of Love, Learning, and Awareness

Leland Shoemake’s passing is a reminder of how life can change in an instant. His love for learning, his family, and even the dirt he played in became part of a story that continues to touch thousands of hearts.

His final note remains a symbol of connection that even death couldn’t break. And in sharing his story, we help ensure that other families might never have to endure the same loss.

Let Leland’s legacy inspire us to learn more, protect more, and love more—every single day.

 

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